Ixxy have been working with The Lily Foundation since the charity was founded in 2007. We were delighted to hear that the 15th Anniversary of the charity would be recognised with the award of an MBE to the founder Liz Curtis for her work in raising awareness of Mitochondrial Disease, fundraising and providing invaluable support to families affected by the disease.
Liz was named as an MBE recipient in the 2021 Queen's Birthday Honours list, after being nominated by several families who have been supported by The Lily Foundation. Clare Tranter, who lost her first child to the disease, wrote:
"We will always be so grateful to Liz and The Lily Foundation. The support we received from them has been life-changing. Without it, we may never have had the two healthy children we have today."
Liz's nomination was also backed by top scientists in the field of mitochondrial disease. Prof Sir Doug Turnbull, formerly Director of the Wellcome Centre for Mitochondrial Research and one of the world's most respected mito experts, referred to Liz as "an extraordinary woman" who had "transformed the advice and support available for patients with mitochondrial disease in the UK".
Liz Curtis with her daughter Lily in 2007
Ixxy support The Lily Foundation with a front end website and multiple data integrations to facilitate the running of their numerous fundraising events, CRM, e commerce and support systems for the families that they help. We look forward to further projects with this wonderful charity in the coming years.